Photo front row L-R : Aimee Tilley, soon to be shaved Guitarist Jack Gander and Tresham College Music Lecturer Kieran Harvey with the music students performing and Tresham College Head of Performing Arts, Media and Music Abby Smith (top)
In readiness for their social action week, Media students created an information video about the relatively unknown disease and worked with Isaac to film his own superhero episode. Head of Performing Arts, Media and Music Abby Smith presented their work to Isaac’s Mum Aimee today:
“The students have developed a social media friendly video to help raise awareness of Batten Disease, plus a fun version featuring Isaac as Spiderman with super powers. Our talented music students are also playing a gig to raise money, the performing arts students are putting on a showcase and all the students have organised various fundraising activities such as cake sales and a raffle.
“All the money raised will be shared between the Batten Disease Family Association charity and the Go Fund Me page created by Isaac’s Aunt called Isaac’s Journey Fighting Battens,” said Abby.
Isaac’s mum, Aimee Tilley, thanked the students for their support and will be attending the music gig with Isaac on Friday 11th March:
